Written by Franca Lombardi, ECH client and volunteer
I’m an ECH client and volunteer living with Retinitis Pigmentosa, a condition that has left me legally blind. My vision is limited to a small tunnel and I experience short-sightedness and night blindness. Despite these challenges, the support I receive from ECH helps me stay independent and active in my community.
ECH provides weekly assistance that includes cleaning, social support and transport. Their occupational therapists (OTs) have introduced me to assistive technologies like my talking air fryer and helped me learn how to use them. Over the years, I’ve also been provided with tools like a white cane, magnifiers, and a talking thermometer, all of which have made daily tasks more manageable and safer.
The social activities organised by ECH, such as group bus trips, are a highlight for me. Navigating through crowds or reading labels can be frustrating, but with the support of ECH staff, these moments become less daunting.
For those who are new to vision impairment, I encourage seeking support early. ECH tailors its assistance to your individual needs, whether it’s helping you adapt to cooking with a talking thermometer or marking buttons on appliances with raised dots. Their approach makes it possible to continue doing the activities you love in new ways.
Losing vision can feel overwhelming, but with the right support, you can maintain your independence and stay connected to your community. My advice is to embrace the help available, whether it’s assistive technology, guidance from OTs or practical support for daily life. Independence is still achievable, and you don’t have to navigate the journey alone.
Thanks to ECH, I’m living well with vision impairment and continuing to do the things that matter most to me.
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Please note that this information is of a general nature only. Should you or someone you know have concerns about their vision, please seek professional medical advice.
